Bleeding and blood-clotting disorders can be life-threatening, so it is critical to get an accurate diagnosis and appropriate treatment. Blood clots, or thrombosis, can have a variety of causes and their treatment depends on your current, individual health situation. Hemophilia and similar bleeding disorders are often genetic and they, too, require specialized treatment.
We believe that treating blood-clotting disorders is best done by a team of doctors with expertise in a range of medical specialties including hematology, internal medicine, surgery and genetics. We assemble a team based on each patient’s unique situation and needs, to provide them with optimal care.
Hemophilia & Thrombosis at Kapiolani
The Kapiolani Hemophilia & Thrombosis Treatment Center is dedicated to serving patients living with hemophilia and coagulation disorders by providing comprehensive care that focuses on the person and the family as a whole. The Center believes that through community outreach and education, we strengthen our ability to ensure ongoing coordinated care for patients.
The Center focuses on providing comprehensive care by involving patients and their families in identifying and addressing their medical, emotional, physical, educational, psychological, vocational and financial needs that often accompany hemophilia and other bleeding disorders. The concept of providing comprehensive care has led to an improved quality of life for individuals with bleeding disorders through acquired independence, decreased morbidity and prevention of other related health problems. Maintaining annual visits with the Center’s team is an important factor in maintaining one’s health and reducing overall health care costs.
Services
- Family-centered, comprehensive annual visits
- Emphasis on prevention to reduce complications related to hemophilia
- Collaboration and coordination of services with the Centers for Disease Control and Prevention (CDC), National Hemophilia Foundation (NHF), state and local agencies
- Enhanced care for women with bleeding disorders
- Linkage of patients with primary care providers
- Physical therapy and mobility assessments
- Physician consultations
- Orthopedic evaluations and treatments
- Advocacy and education
- Outreach and research
- Psycho-social assessments and community referrals
- Educational, vocational and financial support
- Emotional counseling and support groups for parents and teens
- 340B pharmacy provider
Although the Center works with many different health plans, it is important for patients to verify with their insurance provider that all the necessary referrals and authorizations have been obtained prior to their visit.
Location and Hours
Kapiolani
Pediatric Ambulatory Unit
1319 Punahou Street, 2nd Floor
Honolulu, HI 96826
The Hemophilia Clinic is held on the first and third Thursday of every month.
Appointments are scheduled at 9 a.m., 10 a.m., 11 a.m., 1 p.m., 2 p.m. and 3 p.m.
The Coagulation Clinic is held on the second and fourth Thursday of every month.
Appointments are scheduled at 9 a.m., 10 a.m. and 11 a.m.
To schedule an appointment, please call: 1-808-983-8551
You may e-mail questions to: hemophilia_info@kapiolani.org
History
In 1973, the National Hemophilia Foundation established a network of nationwide hemophilia diagnostic and treatment centers. Today, there are nearly 141 federally funded treatment centers and programs nationwide. Kapiolani Hemophilia & Thrombosis Treatment Center of Hawaii provides diagnosis, treatment, education, prevention, outreach and research services, according to CDC and HRSA goals and NHF guidelines (MASAC recommendation 132).
This service is available at: Kapiolani